Newborn screening programs are a collaborative effort between public health departments, hospitals, government agencies and the parents of the children screened. As new technologies evolve, new challenges are faced. The goal of the STAR-G project was to examine the financial, ethical, legal and social issues posed by the use of new technologies in newborn screening.
The STAR-G Project officially ended in 2004, but the Western States Genetic Services Collaborative (WSGSC) continues to maintain and update the STAR-G website and parent fact sheets. For more information about the WSGSC, go to: www.westernstatesgenetics.org
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Genetic Services Project, grant number H46MC24091-03-00, for $600,000. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
If you would like copies of the Disorder Fact Sheets for Parents translated in Spanish, please click here.