Information About Parents' Fact Sheets

What is Newborn Screening?

The STAR-G Project has put together fact sheets about disorders commonly screened for by expanded newborn screening. The fact sheets were written specifically for families that have received an initial diagnosis of one of the disorders and want to know more general information. They address issues and answer questions that are of particular concern to parents.

You are welcome to view these fact sheets--however, please remember that the fact sheets were written for informational purposes only. The fact sheets should not be a substitute for professional medical advice, diagnosis or treatment.

Each fact sheet was extensively reviewed by the STAR-G Project's Steering and Education committees, by metabolic specialists from across the U.S. , and by family support groups. More detail about the creation and review of the fact sheets can be found in the flow chart below:

Parent fact sheet flowchart

Please Help!

If you have used the parent fact sheets above, please click on the link below to complete a short survey. Your responses will help us justify our work to update and maintain the information in the fact sheets. Thank you!

graphic of a survey

Amino Acid Disorders

Fatty Acid Oxidation Disorders

Organic Acid Disorders

Other Disorders