Message Library

The Message Library contains key pieces of information, or "messages" that have been adapted from state newborn screening brochures and requested by parents. All messages are written at about a sixth grade reading level, are not copyrighted, and can be included or adapted to fit within your newborn screening educational materials.

To select a message for use: click on the appropriate category; highlight the message; copy it by pressing Ctrl-C on your keyboard or selecting "copy" from the Edit menu; and paste it into your document by pressing Ctrl-V on your keyboard or selecting "paste" from the Edit menu.

For more information about the Message Library, refer to An Introduction to the Message and Graphics Libraries.

Category:

Who Should be Tested
One Test is Required
Two Tests are Required
Cost and Billing
Test Safety
Declining the Test
General Description of Disorders
Disorder-Specific Information
Importance of Early Identification
Treatment
How a Specimen is Obtained
Communication of Results
Screening Test Definition
Abnormal Result
How to Get More Information
Getting Testing Outside of the NBMS Program

Who Should be Tested
State law requires that all babies have the test.

One Test is Required
State law requires that the test should be done by [age].

Two Tests are Required
State law requires each baby have two tests. The first test should be done by [age]. The second test should be done by [age].

Cost and Billing
The cost of the [newborn screening blood test] is usually covered by health insurance or [state Medicaid agency]. If you do not have health insurance and you cannot afford the fee, contact [contact information- ].

Test Safety
The test is simple and safe.

Declining the Test
State law requires that all babies have the test. You can refuse the test only if it conflicts with your religious beliefs.

General Description of Disorders
The [newborn screening blood test] looks for rare, but serious disorders. Babies with these disorders look normal, but can get very sick or die.

Disorder-Specific Information
(Parents may be overwhelmed by a description of each of the disorders included in a screening panel. However, if you would like to provide disorder-specific information in your brochure, you may refer to our parent fact sheets or disorder descriptions.)

Importance of Early Identification
The [newborn screening blood test] helps find babies with these disorders as soon as possible. This way, treatment can be started very early.

Treatment
If found early, babies with most of these conditions can be treated and live healthy lives.

How a Specimen is Obtained
A few drops of blood from your baby's heel are put onto a special test paper.

Communication of Results
Ask your baby's doctor or health care provider for the results. It usually takes two weeks for your doctor to get results.

Screening Test Definition
Babies with the disorders can be missed. Not all babies with these disorders will be detected.

Abnormal Result
An abnormal result means that your baby needs more testing. It is important that you do this additional testing quickly.

How to Get More Information
For more information, contact the Newborn Screening Program [phone #, address, website, etc]. You can also talk to your doctor or health care provider.

Getting Testing Outside of the NBMS Program
(Please refer to our How to Obtain the Expanded Newborn Screening Blood Test Brochure).